Another resource for families of children with disabilities

Center_for_Parent_Information_and_Resources_logo

Center for Parent Information and Resources

The Center for Parent Information and Resources (CPIR) serves as a central resource of information and products to the community of Parent Training Information (PTI) Centers and the Community Parent Resource Centers (CPRCs), so that they can focus their efforts on serving families of children with disabilities.

 


“Life in a Special-Needs World”

Parents Magazine Study Reveals One In Four Moms Wonder Whether A Special Needs Evaluation Is Needed For Their Child (via PR Newswire)

“Life in a Special-Needs World” Exclusive Report Explores Health and Happiness of Children of All Abilities NEW YORK, March 11, 2014 /PRNewswire/ — Parents magazine today revealed exclusive results from a study of moms of children with special needs…


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Support for ABLE Act Continues to Grow

Support continues to grow for the Achieving a Better Life Experience Act (ABLE Act – S. 313/H.R. 647), introduced by U.S. Senators Bob Casey (D-PA) and Richard Burr (R-NC). The ABLE Act would help parents save for their children’s long term care and ease financial strains faced by families of individuals with disabilities by making tax-free savings accounts available to cover qualified expenses such as education, housing, medical, and transportation. The New York Times Editorial Board has weighed in on this important issue. Read their endorsement of the ABLE Act here.


Your Dollars@Work: One Family’s Toilet Training Miracle

Amy Kelly and family

Amy Kelly and family

A mom shares a life-changing insight followed by expert care, thanks to the Autism Speaks Autism Treatment Network. Read about it over on their blog.


Special Needs Registry for Individuals in Southeastern, PA

Special Needs Registry

A new registry jointly developed by Bucks, Chester and Montgomery Counties to allow citizens with special needs and their associates to voluntarily provide information to assist emergency response agencies.

The Registry is a planning tool to allow individuals with special needs the opportunity to provide information to emergency response agencies, so emergency responders can better plan to serve them in a disaster or other emergencies. The Registry is a cooperative effort between Bucks, Chester, Delaware and Montgomery Counties, brought to you by the South-eastern Pennsylvania Regional Task Force.

You can read more about this registry or sign up at: https://specialneedspa.org.


Free Community Seminar

Trust Planning for your Loved Ones with Special Needs

Abington Township Library
1030 Old York Road
Abington, PA 19001

Date: Thursday, February 27, 2014
Time: 6:00 PM – 8:00 PM

Presenters:
Joseph M. Masiuk, Esq. Flood & Masiuk, LLC
Kelly Clarke, MSW, Executive Director Plan of PA
Patrick Bergmaier, CFP® Independence Wealth Strategies, an office of MetLife

To Register
Call 215.322.6330

 

Note: The material on this site is provided for informational purposes only, and is not intended to imply and should not be construed as an endorsement of any product or service.


Businessman Befriends Autistic Girl on Flight, Makes Everyone’s Day

Shanell Mouland and Kate

Shanell Mouland and Kate (Photo courtesy of Shanell Mouland)

The mother of an autistic toddler, whose open letter to a kind stranger she sat next to on a plane made headlines, has reconnected with the man who made her daughter smile during a two-and-a-half-hour flight. Read about this heartwarming story at: http://shine.yahoo.com/parenting/businessman-befriends-autistic-girl-flight-makes-everyone-39-235300300.html


Modified Checklist for Autism in Toddlers, Revised with Follow-Up (M-CHAT-R/F)

The journal PEDIATRICS has just published an article on the validation of the Modified Checklist for Autism in Toddlers, Revised with Follow-Up (M-CHAT-R/F).

The M-CHAT-R/F (Robins, Fein, & Barton, 2009) is a 2-stage parent-report screening tool to assess risk for Autism Spectrum Disorder in toddlers. It can be administered and scored as part of a well-child care visit, and also can be used by specialists or other professionals to assess risk for ASD.

Professionals using the 2-stage screener can be confident that most screen-positive cases warrant evaluation and referral for early intervention. Widespread implementation of universal screening can lower the age of ASD diagnosis by 2 years compared with recent surveillance findings, increasing time available for early intervention.

It is strongly recommended that users switch to this new version of M-CHAT-R/F. It is available for free download for clinical, research, and educational purposes here.


ADHD Parents Medication Guide

ADHD Med Guide

The American Academy of Child and Adolescent Psychiatry (AACAP) has published a newly revised medication guide for parents on treating Attention-Deficit/Hyperactivity Disorder (ADHD).

Updates to the guide include the addition of new research about children with ADHD in school, the transition of adolescents with ADHD into college and adulthood, and more effective treatments.

“We hope this Guide will aid families to better understand the advances being made in ADHD and its treatment, and to serve as a useful tool for clinicians caring for individuals with this disorder,” said Theodore Petti, M.D., medication guide workgroup chair.

To download the pdf of the ADHD Parents Medication Guide click here (45 pp).


2nd Family Resilience Conference

Mr. Taylor & Dr. NaseefDr. Naseef 2Dr. Naseef 1Mr. LeBuffe & Dr. NaseefMr. Bud TaylorDr. Benoit & Mr. Kreider
Vernick SmithLunch AudienceAttendees at Info TableMr. Kreider & the FotisKids at Snack TimePumpkin Painting
Sib ShopA Capella Pops Performing 1A Capella Pops Performing 2

2nd Family Resilience Conference, a set on Flickr.

Posted a few photos to Flickr from our conference last month.


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