A new registry jointly developed by Bucks, Chester and Montgomery Counties to allow citizens with special needs and their associates to voluntarily provide information to assist emergency response agencies.
You can read more about this registry or sign up at: https://specialneedspa.org.
Abington Township Library
1030 Old York Road
Abington, PA 19001
Date: Thursday, February 27, 2014
Time: 6:00 PM – 8:00 PM
Joseph M. Masiuk, Esq. Flood & Masiuk, LLC
Kelly Clarke, MSW, Executive Director Plan of PA
Patrick Bergmaier, CFP® Independence Wealth Strategies, an office of MetLife
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2nd Family Resilience Conference, a set on Flickr.
Posted a few photos to Flickr from our conference last month.
Do you find it difficult getting your child to do his homework? The National Center for Learning Disabilities has “Homework Tips for Parents” that you might find helpful.
October is Learning Disabilities Awareness Month. In recognition of this we are asked to teach one person something new about learning disabilities.
NCLD will select the best submission on October 22 and the winner will receive an LD prize pack.
Arizona’s Verrado High School entry into the Good Morning America/Katy Perry Roar contest has gone viral, in part because of one special cheerleader. The instructions for the “Good Morning America” Katy Perry music video contest were simple: Students had to submit a music video for Perry’s song “Roar” featuring fellow students up to two minutes long by Oct. 1.
Perry will perform a concert at the winning school on Oct. 25, which also will be broadcast on “Good Morning America.”
The High School’s video tells the story of 18-year-old senior Megan Squire who was born with Down syndrome. Squire has been on the cheerleading team for four years and is now on the varsity squad. The video re-enacts Squire’s attempt to get on the team.
See the video on YouTube.
A recent study finds that healthy siblings of children with a disability experienced more problems with interpersonal relationships, psychological issues, functioning at school, and getting involved with sports and hobbies than did kids without such siblings. Read more about the study here.
As the first U.S. government shutdown in more than 17 years takes hold, some programs benefiting people with disabilities will continue with business as usual while others grind to a halt.
The shutdown, which began Tuesday, comes after Congress failed to reach a deal to fund the federal government for the new fiscal year starting in October. Under a shutdown, some services considered “essential” will continue operating while many other government activities will come to a standstill as 800,000 federal workers are sent home until a new budget takes effect.
Take a look at how the shutdown will impact programs that people with developmental disabilities rely on at the Disability Scoop website.
The NIH has established a new Down syndrome patient registry that will facilitate contacts and information sharing among families, patients, researchers and parent groups.
DS-Connect™ will allow people with Down syndrome or their family members to enter contact information and health history in an online, secure, confidential database. Registry participants will be able to customize their profile, update it online, and choose which information they would like to display, including reminders about their own medical care and general information about Down syndrome. They also will be able to compare their own medical information to that of other registrants in a confidential and anonymous manner.
If a participant gives permission to be contacted, clinicians and researchers who are authorized to access the database will be able to contact these individuals to see if they are interested in participating in a research study.
“The new registry provides an important resource to individuals with Down syndrome and their families,” said Yvonne T. Maddox, deputy director of the NIH’s Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD), which is funding the registry. “The registry links those seeking volunteers for their research studies with those who most stand to benefit from the research.”
To read more about or register with this confidential database visit DS-Connect™.