Free Resources for Parents and Caregivers
Aging Issues for Individuals with I/DD – Pauline Adongo, R.N.
Promoting Family Resilience – Paul LeBuffe
Legal Issues in Planning for Individuals with Special Needs -
Ira Fingles, Esq. & Lori McLaughlin, Esq.
Head Up, Bounce Back: Resilience in YOUth – Kyshon Johnson
The Family’s Search for Meaning: Life with a Special Needs Child – Kelly & LeBuffe
Family Advocacy Gets Results – Frank Cervone, Esq.
Psychotropic Medications in Children & Adolescents– Marilyn B. Benoit, M.D.
Meeting the Needs of Siblings of Special Needs– Karen Brenneman
Internet Resource List
National Alliance on Mental Illness (NAMI) Child & Adolescent Action Center
Keeping Children with Special Needs Safe in the Home
A series of safety videos highlighting how you can take precautions in the home to help prevent injuries to children with physical, developmental or cognitive disabilities.
Facts for Families
The American Academy of Child Adolescent Psychiatry (AACAP) developed Facts for Families to provide concise and up-to-date information on issues that affect children, teenagers, and their families.
Publications available for download:
Promoting Resilience in Children: What Parents Can Do
Center for Effective Collaboration and Practice (PDF) 181 kB 6p.
Therapies for Children with Autism Spectrum Disorders: A Review of the Research for Parents and Caregivers.
Agency for Healthcare Research and Quality (AHRQ) Publication, 2011. (PDF) 465 kB 16p.
Treatment Options for ADHD in Children and Teens: A Review of Research for Parents and Caregivers.
AHRQ Publication, 2012. (PDF) 603 kB 20p.
Treatment of Children with Mental Illness: Answers to frequently asked questions about the treatment of mental disorders in children.
NIMH Publication, 2009. (PDF) 547 kB 6p.
Antipsychotic Medicines for Children and Teens: A Review of the Research for Parents and Caregivers
AHRQ Publication, 2012. (PDF) 327 kB 12p.
Mental Health Medications
This guide describes the types of medications used to treat mental disorders, side effects of medications, directions for taking medications, and includes any FDA warnings.
NIMH Publication, 2010. (PDF) 804 kB 30p.
Special Care Organizational Record (SCOR) for Children with Special Health Care Needs
This records organizer was designed as an organizing tool for parents with children with special health care needs. It is intended to help track and organize a child’s information to make it easier for someone else to care for the child in the parent’s absence. (PDF) 5.6MB 80p.
Special Care Organization Record (SCOR) for Adults with Special Health Care Needs
This records organizer is specifically designed as an organizing tool for families with an adult member with special health care needs. This includes spouses and adult children with special health care needs as well as any other adult dependent family member. (PDF) 4.6MB 80 p.
Special Care Organization Record (SCOR) for Eldercare
The Records Organizer for Eldercare is designed to facilitate the care of the older members of your family. It is intended to provide a central location for keeping and tracking your older relative’s records and other pertinent information. (PDF) 3.2MB 72 p.