Originally posted on seizinghopedotcom:
Emily and I on a rare 1:1 lunch date
Invisibility. That’s the superpower that siblings of special needs kids cultivate. Even if they wanted a different one like being able to fly they would be stuck with invisible. It’s not a choice. None of us got a choice.
It’s not that I don’t actually see my other children. And it’s not that I don’t try. It’s just that no matter how much effort and attention I give them Haley, by virtue of her diagnosis, needs more. We all sacrifice things for her. Whether it’s a family vacation because the medical bills are too much, or a trip to an amusement park because Haley can’t do the rides, or not participating in an after school activity because Haley has a Dr appointment. But one of the things that we don’t really acknowledge is sacrificed is…
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In light of the measles outbreak, Devereux President and CEO, Robert Kreider has posted a statement regarding the vaccine debate. Please take a moment to read it on Devereux’s website.
Autism Speaks has revised its official statement about vaccines. The new statement is shorter than the previous one. See their website for their official statement on vaccines and autism.
On Tuesday, January 6th, 2015 at 7pm the People’s Light & Theatre Company will be offering a sensory-friendly performance of Arthur and the Tale of the Red Dragon: A Musical Panto. Sensory-friendly performances are designed to create a theatre experience that is welcoming to all families with members (children or adults) on the autism spectrum or with other sensory sensitivities. For this special performance, the theatre environment at People’s Light will be adjusted to provide a sensory-friendly, comfortable and judgment-free space. Adjustments include:
- House lights will remain on at a low level in the theater during the performance;
- Lower sound level, especially for startling or loud sounds;
- A reduction of strobe lighting;
- Patrons are free to talk and leave their seats during the performance;
- Designated quiet areas within the theater;
- Space throughout the theater for standing and movement;
- Limited crowds and visitors through the theatre lobby during the day and timing of the performance;
- A quiet area will be available where children and their families can relax in our theatre’s lobby;
- Fidget and stress sensory toys will be available to borrow as needed; and
- People’s Light staff trained to be inviting and accommodating to families’ needs.
The Mental Health Channel (MHC) is a new online mental wellness channel. It will soon have 12 series of original documentaries, 120 episodes in all available to view. MHC was created to raise awareness by showing inspiring true stories and provide new perspectives on mental wellness. Currently 19 of the episodes are available to view. It’s a channel like any you’d see on cable but it’s free to view and commercial free. MHC is underwritten by the Mental Health Awareness Fund, a 501c3 nonprofit.
October 5-11 is Mental Illness Awareness Week. What we call “mental illness” really refers to BRAIN disorders. Depression is a very serious BRAIN disorder which can kill. Robin Williams’ recent suicide was a tragic example of the lethality of depression. The research shows that addiction problems are very highly linked to “mental illness.” Please join us on Saturday, October 18 for our third annual Family Resilience Conference, a free event where you will learn how to support your loved ones with BRAIN disorders and other special needs. Our keynote speaker, Andrew Solomon, has written about his own experience with depression. Learn more at www.devereux.org/resilientfamilies.