Special Supplement to Pediatrics Focuses on the Care and Treatment of Youth with Autism

The February issue of Pediatrics includes a special supplement featuring federally supported, collaborative research on the health care and medical treatment of children and adolescents with autism spectrum disorder (ASD) and other neurodevelopmental disorders. Released by the Autism Intervention Research Network on Physical Health (AIR-P) and Autism Speaks Autism Treatment Network (ATN), the supplement, “Health Care for Children and Youth with Autism and other Neurodevelopmental Disorders,” reports on a broad array of findings by network investigators, as well as other research supported by the U.S. Maternal and Child Health Bureau.

The compendium also includes practice guidelines addressing anxiety treatment and studies on access to diagnosis of ASD, creating autism-specific care plans in hospitals, evaluation of emergency department care for children with ASD, transition services for youth with ASD and co-occurring symptoms such as depression, sleep, irritability and behavior problems.

Daniel Coury, MD is the co-author of six of the articles in this special supplement.

Dr. Coury is Professor of Pediatrics and Psychiatry in the College of Medicine at The Ohio State University. He also serves as chief of the Section of Developmental and Behavioral Pediatrics for Nationwide Children’s Hospital in Columbus, Ohio, and as the Medical Director of AIR-P and ATN.

Dr. Coury will be offering a workshop on the medical management of individuals with Autism Spectrum at an upcoming Autism conference that is being sponsored by Devereux in partnership with Autsim Delaware.

Stay tuned for more details about the upcoming conference, “Autism A-Z: Beyond the Puzzle” scheduled for September 30, 2016.


Imbeciles: The Supreme Court, American Eugenics, and the Sterilization of Carrie Buck

Imbeciles: The Supreme Court, American Eugenics, and the Sterilization of Carrie Buck a new book by Adam Cohen has just been published.

In 1927, the U.S. Supreme Court decided, by a vote of 8 to 1, to uphold a state’s right to forcibly sterilize a person considered unfit to procreate. The case, known as Buck v. Bell, centered on a young woman named Carrie Buck, whom the state of Virginia had deemed to be “feebleminded.”

Author Adam Cohen tells Fresh Air’s Terry Gross that Buck v. Bell was considered a victory for America’s eugenics movement, an early 20th century school of thought that emphasized biological determinism and actively sought to “breed out” traits that were considered undesirable. Continue reading or listen to the story on the NPR website. See: “The Supreme Court Ruling That Led To 70,000 Forced Sterilizations“.

 


‘In a Different Key: The Story of Autism,’ by John Donvan and Caren Zucker

‘In a Different Key: The Story of Autism,’ by John Donvan and Caren Zucker is a new book that tells the story of Donald Triplett of Forest, Mississippi who became the first child diagnosed with autism nearly seventy-five years ago.

“Magnificent…Spellbinding—a fable about greed, power and betrayal told through the lens of autism…Chock-full of suspense and hairpin turns…This book does what no other on autism has done: capture all the slippery, bewildering and deceptive aspects…I have been the mother of an autistic son since 1988…I wept and laughed and raged while reading In a Different Key, all the while thinking, Yes! This is my experience, including the raw and dirty parts, but also the wonder and joy.” –Ann Bauer, Washington Post

Read book excerpt here:
http://abcnews.go.com/Health/book-excerpt-key-story-autism-john-donvan-caren/story?id=36317965

‘In a Different Key: The Story of Autism,’ by John Donvan and Caren Zucker
New York Times Sunday Book Review
http://www.nytimes.com/2016/01/31/books/review/in-a-different-key-the-story-of-autism-by-john-donvan-and-caren-zucker.html?_r=0

‘In A Different Key’ Traces History And Politics Of Autism
NPR
http://www.npr.org/sections/health-shots/2016/01/19/463601735/in-a-different-key-traces-history-and-politics-of-autism


Transition Pathways: A College Program at Drexel University for Individuals with Autism

A $3.5 million grant donated anonymously will allow for the A.J. Drexel Autism Institute at Drexel University to become an innovation incubator for pilot programs to prevent young adults on the spectrum from falling through the cracks after high school.

Named “Transition Pathways,” the demonstration programs will help high school seniors and recent graduates on the cusp of living or working independently.

Read more at: http://drexel.edu/now/archive/2016/February/Pathways_Program

 


Parent Support Group

Parent Support Group

In addition to weekly Wednesday sessions Child & Family Connections has added weekly Saturday sessions to their Parent Support Group for parents with a mental illness. Please help them to spread the word about this Free Nationwide Parent Support Group.

No registration required. Call at start of group (toll free 1-888-601-3515) or participate online at https://www.uberconference.com/childandfamily

 

 

 


CDC Awards $3.4 Million to CHADD

CHADD’s National Resource Center on ADHD was recently awarded $3.4 million over the next four years by the Centers for Disease Control and Prevention to serve as the nation’s clearinghouse for evidence-based information on ADHD. Read more at: http://www.chadd.org/Understanding-ADHD/About-ADHD/Newsletter-Archive/Newsletter-Article.aspx?id=3

 

 


Hillary Clinton’s Plan to Support Children, Youth, and Adults Living with Autism and their Families

Hillary Clinton announced a wide-ranging autism initiative—including screening, diagnosis, treatment, services, safety and legal protections for individuals on the autism spectrum across the lifespan, steps to ensure they are treated with dignity, partnerships to help them secure employment, support for families and caregivers, and a commitment to increase research funding to deepen our understanding of autism.

Source: Hillary Clinton’s Plan to Support Children, Youth, and Adults Living with Autism and their Families


Parenting Day to Night—January 7, 2016

NYU Langone’s Child Study Center hosts weekly workshops on various topics related to raising healthy kids, managing behavior, and emotional health.

The next one scheduled on January 7, 2016 is “Parenting Day to Night”.   Parenting is more than a full-time job—especially for kids with ADHD. This workshop presents practical advice for getting through the day—from morning routine to bedtime—with less stress and resistance.

To register for this workshop and to view their schedule of upcoming workshops see:

http://nyulangone.org/locations/child-study-center/child-study-center-workshops


How Do You Bounce Back from Setbacks?

Check out these ideas and tools for bouncing back and building resilience that are useful for both adults and children.

Source: How Do You Bounce Back from Setbacks? | Edutopia


Children See. Children Learn.

Children See. Children Learn.

Check out this PSA clip on ACEsConnection: http://www.acesconnection.com/clip/children-see-children-learn produced by a Canadian organization. Read more at: http://www.childrenseechildrenlearn.ca


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